Last Thursday, one of our friends, Alexa Simmons, died. I’m only able to blog about it now, after the numbness has worn off and I’m not crying uncontrollably. She had hydrocephalus (caused by EDS and Chiari ) and was in the ICU (one step below air-lock). She’d been in there for a while with infections […]
[Continue reading...] about Alexa, you will be missed